AFTD offers a state-by-state list of resources, opportunities to connect, and ways to get involved in advancing a world with compassionate care, effective support, and a future free of FTD.  The organization also offers guidance for those newly diagnosed, guidance for managing FTD, and the latest information on FTD-specific support groups near you.  

The Association for Frontotemporal Degeneration

AFTD’s mission is to improve the quality of life of people affected by FTD and drive research to a cure. We work every day to advance:

• Research. We promote and fund research toward diagnosis, treatment and a cure.

• Awareness. We stimulate greater public awareness and understanding.

• Support. We provide information and support to those directly impacted.

• Education. We promote and provide education for healthcare professionals.

• Advocacy. We advocate for research and appropriate, affordable services.

Bluefield Project: Curing FTD

The Bluefield Project employs a comprehensive approach, funding research central to understanding the basic, translational and clinical time course of progranulin-deficient FTD. We have funded over 26 investigators, whose work directly led to two clinical trials and two patent applications. Our investigators have screened nearly 500,000 compounds, published over 100 papers, and trained over 50 scientists in FTD research. We actively pursue collaborations with pharma and biotech companies, which have both the necessary funding and drug development expertise, to speed the development of a therapy.  

Brain Support Network

Brain Support Network (BSN) is a non-profit, charitable organization dedicated to the well-being of those challenged by neurodegenerative disorders. Brain Support Network has three missions:

1. Brain Donation

2. Family Education

3. Caregiver Support

Cure PSP

Cure PSP is committed to awareness, education, care and cure for devastating prime of life neurodegenerative diseases. hese include progressive supranuclear palsy (PSP), corticobasal degeneration (CBD),  multiple system atrophy (MSA), and others. 

CurePSP is the leading foundation serving patients and families, creating awareness and funding research into prime of life neurodegeneration. Your contribution will help us to carry out this important work.

FTD Disorders Registry

The FTD Disorders Registry is an online database which was established to collect information from those affected by all types of Frontotemporal Degeneration (FTD):

• behavioral variant FTD (bvFTD)

• primary progressive aphasia (PPA)

• progressive supranuclear palsy (PSP)

• corticobasal degeneration (CBD)

• FTD with motor neuron disease (also called FTD-ALS). 

Persons diagnosed, (current/former) caregivers, family, and friends can join. As a member of the Registry, you can help advance the science and move faster toward finding treatments and cures.

Tau Consortium

About the Rainwater Charitable Foundation’s Medical Research:
The Rainwater Charitable Foundation was created in the early 1990s by renowned investor and philanthropist Richard E. Rainwater. The foundation supports a range of different programs in K-12 education, medical research, and other worthy causes. To accelerate the development of new diagnostics and treatments for tau-related neurodegenerative disorders, the Rainwater Charitable Foundation Medical Research team manages the Tau Consortium and the Rainwater Prize Program. With more than $100 million invested to date, the Rainwater family has helped to advance eight treatments into human trials. For more information, please visit their website.